Health topic
Sickle Cell
Gene therapy, pain management, advocacy and the HBCU researchers leading sickle cell science.
The number
100K
Americans living with sickle cell disease — most of them Black
Why it matters
Sickle cell has been underfunded for decades, but new gene therapies and HBCU-led research are changing what a diagnosis means.
- Know your trait status
- Build a care plan before a crisis
- Ask about new treatments and trials
- Connect with a sickle cell center of excellence
Articles
View all newsroom
Latest · Sickle Cell
Streamlined Stem Cell Collection Offers New Hope for Sickle Cell Patients
A streamlined stem cell collection protocol developed by researchers could significantly reduce hospital stays and expand access to curative gene therapies for sickle cell patients.
September 1, 2026 · Source: Medical Xpress

Sickle Cell
Advancing Awareness and Access for Breakthrough Sickle Cell Therapies
Connecting Black patients with transformative sickle cell treatments requires culturally competent outreach and trusted medical leadership.
August 22, 2026 · Source: Medical Marketing and Media

Sickle Cell
Sickle Cell Advocates Urge California Governor to Protect Essential Care Funding
Advocates and patients call on California leadership to maintain essential state funding for specialized adult clinics and equitable care.
August 22, 2026 · Source: The Sacramento Observer

Sickle Cell
The Urgent Need for African American Blood Donors in the Fight Against Sickle Cell Disease
Increased participation from Black blood donors is vital to providing closely matched transfusions and preventing severe complications for individuals living with sickle cell disease.
August 8, 2026 · Source: WCNC

Sickle Cell
Honoring Juneteenth and World Sickle Cell Day Through Action and Advocacy
The dual observance highlights the ongoing fight for health justice and the vital need for Black blood donors to support individuals living with sickle cell disease.
August 8, 2026 · Source: American Red Cross

Sickle Cell
Sickle Cell Disease Enters the Era of Gene Therapy, But Cures Don't Come Cheaply
While revolutionary gene therapies offer a long-awaited cure for sickle cell disease, high costs and systemic barriers challenge equitable access for Black patients.
August 7, 2026 · Source: WUSF